Patient & Family Advocacy Coordinator - Remote

Overview

The Patient & Family Advocacy Coordinator plays a key role in supporting and elevating the voice of caregivers and patients within the organization. This role is responsible for facilitating the Patient & Family Advisory Council (PFAC), engaging in peer-to-peer support initiatives, participating in care team meetings, and advocating for the needs of families navigating the healthcare system.

In Short

• Assist in preparing and vetting meeting agendas in collaboration with internal care teams.
• Develop PowerPoint presentations for PFAC meetings.
• Process invoices and distribute DoorDash vouchers.
• Send and track feedback forms for PFAs and presenters.
• Consolidate and provide feedback from PFAs to presenters.
• Organize and facilitate PFAC Brainstorming Sessions.
• Support PFAC Recruitment, including inputting verbal referrals into ClickUp.
• Attend daily POD Huddles and Interdisciplinary Team (IDT) meetings.
• Participate in internal project meetings to integrate patient and caregiver perspectives.
• Co-Facilitate bi-weekly support groups.

Requirements

• Strong organizational and administrative skills.
• Experience in patient advocacy, caregiver support, or healthcare navigation is preferred.
• Excellent communication skills.
• Proficiency in Microsoft Office, ClickUp, and virtual meeting platforms.
• Empathy and understanding of the challenges faced by families of children with complex medical needs.

Benefits

• Opportunity to make a significant impact in pediatric healthcare.
• Work in a supportive and collaborative environment.
• Flexible working hours.
• Engagement with a diverse team.
• Professional development opportunities.