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Director of Patient Advocacy - Remote

Posted 13 weeks ago
All others
Full Time
Worldwide

Overview

The Director of Global Patient Advocacy at Portal Therapeutics will shape and implement a global advocacy and engagement strategy, prioritizing relationships with patient advocacy organizations and community leaders.

In Short

  • Establish a global patient advocacy and engagement strategy.
  • Strengthen advocacy relationships with organizations globally.
  • Communicate key learnings from the patient community.
  • Lead strategic planning for patient advocacy operational spend.
  • Inspire a people-first mentality within the company.
  • Maintain knowledge of industry legislation relevant to patient advocacy.
  • Serve as the primary contact for patient advocacy organizations.
  • Require a Bachelor’s degree in a relevant field.
  • Preferred experience in rare diseases and patient advocacy.
  • Ability to travel up to 10-15% is required.

Requirements

  • Bachelor’s degree in life sciences or related field.
  • 7+ years in patient advocacy or similar roles.
  • Strong relationship-building skills with stakeholders.
  • Excellent written and verbal communication skills.
  • Passion for helping the patient community.
  • Flexibility and collaboration with colleagues.
  • Experience in non-profit settings is preferred.
  • Post-graduate degree in relevant fields is valued.
  • Ability to communicate patient needs effectively.
  • Professionalism and leadership abilities required.

Benefits

  • Market-competitive total rewards package.
  • Base pay and annual performance bonus.
  • Company equity options.
  • Generous health benefits.
  • Opportunities for professional growth.
GondolaBio logo

GondolaBio

GondolaBio is a clinical-stage biopharmaceutical company dedicated to developing next-generation therapeutics for genetic diseases. Originally part of BridgeBioX, GondolaBio became an independent entity in 2024 after securing $300M in private financing. The company is located on the Stanford Life Sciences campus and emphasizes collaboration between top scientists and senior leadership to drive innovation in multiple therapeutic areas, including neurology, pulmonology, cardiology, nephrology, and endocrinology. GondolaBio aims to address significant unmet medical needs through cutting-edge biological research and a commitment to scientific excellence.

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