PNH News Columnist - Remote

Overview

Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases, is looking for a PNH News Columnist. This role involves sharing personal experiences and insights related to living with PNH, aiming to inform and inspire a diverse audience.

In Short

• Write personal essays to share experiences with PNH.
• Submit 400-800 word drafts weekly.
• Communicate efficiently with managers and editors.
• Adhere to Bionews policies and procedures.
• Receive feedback and revisions from editors.
• Participate in training as assigned.
• Required to be a member of the PNH community.
• Contract position with flexible work arrangements.
• Work collaboratively with a team of editors.
• Engage with the broader PNH community through writing.

Requirements

• Prior writing experience for an audience.
• At least three months of experience with PNH.
• Caregivers must be direct relatives or guardians.
• Experience with professional editing preferred.
• Ability to generate engaging content regularly.
• Basic knowledge of PNH and its community needs.
• Strong time management skills.
• Fluent English writing and reading abilities.
• Access to the internet and technology.
• Experience with WordPress and Slack is a plus.

Benefits

• Opportunity to share personal experiences and insights.
• Work with professional editors to enhance writing skills.
• Flexible work schedule.
• Be part of a supportive community focused on rare diseases.
• Contribute to raising awareness and understanding of PNH.