Research Coordinator - Remote

Overview

Cure HHT is a leading organization dedicated to advocating for patients and families affected by Hereditary Hemorrhagic Telangiectasia. We are seeking a passionate and detail-oriented Research Coordinator to join our team. The Research Coordinator will play a critical role in supporting ongoing and upcoming research initiatives aimed at improving the understanding, diagnosis, and treatment of HHT. This position will involve coordinating clinical studies, liaising with researchers and clinicians, managing data, and ensuring that our research efforts align with the organization's mission to advance patient care.

In Short

• Help to coordinate and manage research projects, including clinical and observational studies.
• Develop and maintain project timelines, ensuring that all milestones are met according to schedule.
• Organize and facilitate meetings with research teams, including drafting agendas, taking minutes, and tracking action items.
• Collect, manage, and analyze research data in compliance with ethical guidelines and regulatory requirements.
• Ensure the accuracy, integrity, and security of research data, including maintaining patient confidentiality.
• Facilitate communication between the research team, patients, and other stakeholders to ensure the smooth execution of research activities.
• Support patient recruitment and retention efforts, including the development of patient-facing materials and outreach strategies.
• Ensure that all research activities comply with institutional, local, and federal regulations, including IRB submissions and approvals.
• Maintain up-to-date knowledge of relevant guidelines and best practices in clinical research and rare disease advocacy.

Requirements

• Detail-oriented with strong organizational skills.
• Experience in research coordination or project management.
• Strong analytical skills and proficiency in data management.
• Excellent communication and interpersonal skills.
• Knowledge of regulatory requirements in clinical research.
• Ability to work collaboratively with diverse teams.

Benefits

• Opportunity to make a difference in the lives of patients with HHT.
• Collaborative and supportive work environment.
• Professional development opportunities.